Self Help for Hard of Hearing
People, Inc.
Founded 1979
1979 November: Self Help for Hard of Hearing
People, Inc. (SHHH),is founded and incorporated as a non-profit
educational membership organization by CIA retiree Howard
E. “Rocky” Stone of Potomac, Maryland. The
office of SHHH is the family room of the Stone home. Furnishings
were donated by ASHA. Funding is donated by the Stone
family and personal friends.
A brochure offers membership for $7.
The Wall Street Journal writes a story
on Rocky Stone’s career and includes a small paragraph
(5%) on the inception of SHHH. One hundred people from
all over the world write for information and help with
hearing loss.
A small article in Modern Maturity magazine
about the new organization for hard of hearing people
brings 2,500 letters of interest.
The induction loop is introduced by Rocky
Stone in the Washington, D.C., Archdiocese leading to
its introduction elsewhere in the metro capital area.
Stone is chair of the Washington Committee on Ministry
with Persons Who Are Handicapped.
1980
The first 12 page bimonthly Shhh Journal is published in July.
SHHH attracts members from 30 states, Puerto Rico and the
District of Columbia and other countries.
SHHH welcomes its first chartered
SHHH Chapter in Gainesville, GA.
Stone becomes advisor to
the National Institute of Handicapped Research.
Stone testifies before congress
on the problems of millions of Americans who are hard of hearing.
1981
Stone chairs a White House Conference on Aging and Hearing
Loss (co-sponsored by ASHA, NAD, and A.G.Bell). The conference,
the first of its kind, brings together a mix of consumers
and representatives from government, industry, medicine and
academia to identify hearing loss issues, reach conclusions,
and make recommendations. Seven consumers attending return
home committed to begin SHHH chapters in their states.
1982
SHHH adopts a goal: Make Hearing Loss an Issue of National
Concern.
SHHH colors of green and white
are adopted.
A Chapter Manual to assist
organizers is completed by the first regular volunteer, Joan
Kleinrock, who will become SHHH chapter coordinator. SHHH
has 25 chapters.
July: SHHH News, a newsletter
for leaders makes its debut.
Sisters Betty Bonvillian and
Marjorie Boone begin what will be 17 years as weekly Wednesday
volunteers at the SHHH National office.
Financed by Esso of Australia,
Rocky Stone travels to Australia and SHHH gains international
recognition with the establishment of a sister organization
– SHHH Australia.
SHHH expands its National Advisory
Board, its Professional Advisory Board, and gains a medical
advisor, Dr. Howard House, president of the famed House Ear
Institute.
ABC News features a three-part
series of interviews with Rocky about SHHH.
SHHH joins with 27 organizations
that make up the Council for Better Hearing and Speech Month
(May).
October: SHHH is advisor to
Bill Neill, producer of a three-part PBS TV series on hearing
loss and noise, The Hurt That Does Not Show. Part I airs on
310 stations. Parts II and III air in 1984.
SHHH begins involvement
with legislation to advocate for telephone compatibility.
1983
SHHH leases its first office at 4848 Battery Lane in Bethesda.
With the addition of Carol Lingley and Pat Clickener, staff
grows to four full-time volunteers. (Clickener has taken a
one-and-a-half-year leave from a Chicago executive position
in advertising.)
The official SHHH logo is designed
and adopted (Fading SHHH letters represent fading hearing.)
SHHH is a featured story in
a New York Times newspaper.
SHHH has 60 chapters and developing
groups.
There are 10 members of the
board of directors.
Stone is the keynote speaker
at the First Canadian Conference of Hard of Hearing People.
SHHH launches campaign to conserve
the hearing of youth with a project titled Operation SHHH
and publishes a 15 page special report on noise pollution.
SHHH leaders Stone and Clickener
represent hard of hearing people on a variety of national
agencies and organizations.
The groundwork is laid for
a 13th National Institutes of Health the National Institute
on Deafness and Other Communication Disorders (NIDCD)…
and supported by the SHHH membership.
A feature article about Stone
in Modern Maturity, “For Your Eyes Only,” draws
hundreds of inquiries about SHHH.
Stone is elected to the
board of directors of the Deafness Research Foundation (DRF).
1984
The first National Convention is held in Chicago in May. 450
people attend. Here, Pat Clickener becomes the first elected
president of SHHH (succeeding Rocky Stone). Columnist Ann
Landers receives the first SHHH Walter T. Ridder Award. A
large number of attendees go home committed to starting chapters,
so that by November SHHH has 122 chapters.
SHHH moves to larger offices
at 7800 Wisconsin Avenue in Bethesda.
SHHH publishes Self Help in
Action, a special pictorial report of the first fours years
of National and chapter progress.
An SHHH Pen Pal Club for children
with hearing loss is initiated and overseen by a volunteer.
SHHH publication sales begin
with an information series of six pamphlets on assistive listening
devices (ALDs).
Ann Lander’s advises
readers with hearing loss to contact SHHH. The National office,
with the help of many volunteers from local chapters, answers
over 8,000 letters and welcomes 900 new National members.
1985 January: SHHH
begins to pay staff (Stone remains a volunteer throughout
his tenure).
A “Present at the Creation”
birthday party is held in November honoring 30 people who
helped SHHH begin and initiating the first annual Founder’s
Day. Chapters join by raising funds for National.
SHHH has responded to more
than 35,000 pieces of mail.
SHHH has 140 chapters in 33
states.
The board of directors approves
the sale of advertising to support the SHHH Journal.
Publication sales rise. Dr.
Sam Trychin’s videos and manuals on Coping Strategies
for Hearing Impaired People are introduced along with the
SHHH Information Series -(papers on a variety of subjects).
National office opens an Assistive
Listening Devices Demonstration Center directed by Charles
Mizell.
National Volunteer Nursing
Home visitation Program begins: 160 members volunteer to execute
the program.
SHHH and Gallaudet College
hold a two-day symposium on contemporary Issues of Hard of
Hearing Young Adults. From this, a SHHH/Gallaudet Task Force
emerges.
Sam Trychin, Gallaudet psychology
professor teaches Coping Strategies for Hard of Hearing People
classes to SHHH staff and local members.
SHHH joins as a member
of the worldwide International Federation of Hard of Hearing
People (IFHOH).
1986 Stanford
University in Palo Alto, CA, is the site of the second National
Convention chaired by Bill Cutler who is elected SHHH President.
Following nine months preparation,
a Report on Research and Service Priorities for SHHH was approved
by the membership at the convention. Membership adopts 12
priorities, which become the basis for the SHHH priorities
of awareness, access, education, and employment.
SHHH is structured into ten
regions of 4 to 7 states each. Volunteer coordinators in states
and coordinators of regions work to facilitate communication
and strengthen the chapter network and SHHH National.
SHHH “board of directors
is renames SHHH “board of trustees and expands to 27
members who pay all their expenses to attend 3 meetings annually.
There are 14 National committees; i.e., Advocacy, ALDS, Chapter
relations, Finance, Parent Involvement, Young Adults, and
Hearing Loss in later years.
Staff now numbers seven full-time
and one part time employees.
SHHH has 170 chapters and groups
in 41 states.
SHHH begins PALS – a
database of “places with assistive listening devices.”
In one year there will be 5,700 sites.
Stone is keynote speaker for
annual meeting of International Federation of Hard of Hearing
People (IFHOH).
SHHH and ASHA convene the first
workshop on ALDS at ASHA for more than 80 audiologists.
1987 January: SHHH membership
dues increase to $12 a year.
SHHH motto, “Make Hearing
Loss an Issue of National Concern,” becomes the title
of a regular column for Shhh.
Board votes to adopt the existing
International Symbol for Hearing Loss. (NAD holds the U.S.
Copyright.)
Board approved eight Chapter
Standards as a guide for developing groups.
Symposium is held to examine
and formalize SHHH philosophy.
Stone is appointed to the AT&T
Special Needs Advisory Panel.
ASHA awards SHHH their 1987
Distinguished Service Award.
SHHH publicity is widespread
as staff and members appear on television talk shows, and
SHHH is written about in magazines such as U.S. News and World
Report, Time, Family Circle, professional magazines and newspapers
from New York City to Los Angeles.
Ann Landers references SHHH
for the second time in her syndicated column and 8,000 inquiries
are answered at the National office.
Rocky Stone presents a paper
at an International Conference, University of Bristol, England,
and addresses the British Parliament.
SHHH members visit all U.S.
Congressional offices and each congressman is presented with
SHHH materials.
1988 Rochester,
NY, is the site of the third National convention chaired by
Rochester member, Sue Miller. 900 people attend. Colby Chandler,
chairman and CEO of Eastman Kodak Company, receives the Walter
T. Ridder Award. (Also delivers a spell-binding banquet speech.)
Membership votes to increase
dues to $15 per year.
Barbara (Harris) Kelley becomes
Shhh Journal editor. The magazine is printed in 46,000 to
50,000 copies with an estimated 200,000 readers.
Board ratifies guidelines on
the sale of materials in SHHH Chapters.
SHHH established a Development
Office to raise funds to support the organization and ensure
progress.
Fire strikes the National office
in April. Temporary quarters are rented for eight months while
renovation takes place. The membership of SHHH gives over
$80,000 to the “Fire Rebuilding Fund.”
SHHH joins the Council of Organizations
(COR), a strong voice of 17 National organizations concerned
with hearing loss that provide a forum for issues of and for
deaf and hard of hearing people.
SHHH and the network advocate
on Capitol Hill for a National Institute on Deafness and other
Communication Disorders (NIDCD). The bill is signed in October.
The appropriations committee agrees to 96.1 million funding
for the new institute. Stone is appointed to the advisory
council.
SHHH, RSA (Rehabilitation Administration)
and CSAVR (Council of State Administrators of Vocational Rehabilitation
Research) sign a co-operative agreement to provide better
employment services to hard of hearing people.
Several trustees attend the
International Federation of Hard of Hearing Conference in
Geneva, Switzerland (with many assistive listening devices).
SHHH influences major
hotel/motel chains to provide alerting/alarm equipment for
guests.
1989 July:SHHH
celebrates its first decade as 1,050 people attend Convention
1989 in Bethesda. Opening reception is held in the Caucus
Room of the House of Representatives. U.S. Surgeon General
C. Everett Koop (a hearing aid user) receives the 1989 “Walter
T. Ridder Award.” Australia receives an “SHHH
International Award.” SHHH begins an annual awards presentation
reception for chapter and group awards. (This will expand
to include National awards.) Convention chairs are Paul and
Bonnie Hopler from the Nova One (VA) Chapter.
SHHH National returns to renovated
and expanded offices and holds open house in March hosting
some 300 visitors.
SHHH conducts a survey to reveal
that over 150 members in the states are vocalizing the needs
of hard of hearing people by serving on local and state commissions,
councils, and boards.
SHHH membership approves a
Five-Year Strategic Plan to focus on awareness, access, education
and employment.
The paid staff numbers 10 with
10 volunteers.
SHHH lends expertise to the
National Council on Self Help and Public Health.
SHHH joins with A.G.Bell,
Gallaudet University, and NTID to initiate re-certification
of oral interpreting through a series of training courses
SHHH conducts.
1990
Little Rock, AR, hosts the 5th SHHH Convention where Warren
Barnett of Tennessee is elected third president of SHHH. Sen.
Tom Harkin of Iowa is awarded the “Walter T. Ridder
Award” for his service to disabled people. John Centa
of Idaho, retiring trustee, receives the first Howard E. “Rocky”
Stone Humanitarian Award.
Brenda Battat becomes deputy
executive director.
There are 230 chapters and
groups in 48 states (exceptions are Alaska and N. Dakota).
25 states have volunteer state coordinators.
Rocky Stone is appointed by
President Reagan to a three-year term on the Federal Access
Board. (formerly ATBCB)
Staff increases to 14.
Publication Resource Materials/books
approach the 100 count. Shhh (small letters) is dropped in
favor of the use of all Caps at all times. The journal changes
format and is titled SHHH Journal.
SHHH adopts February as “Family
Month” and September as “SHHH National Month.”
Members make an impact
in support of the ADA (Americans with Disabilities Act) signed
into law in July.
1991 At
the 6th SHHH Convention in Denver, Marjorie Boone, VA receives
the second Rocky Stone Humanitarian Award. The SHHH Hospital
Program, Access 2000, a joint project with Canada is launched.
Over the next year 150 hospitals in 37 states will commit
to the program implemented by 150 facilitators from local
Chapters.
President Bush signs the Decoder
Circuitry Act requiring all TVs 13” or larger to have
built in captioning after July 1993. SHHH has been active
in this legislation.
The World Federation
of the Deaf and the International Federation of Hard of Hearing
People issue a joint declaration to clarify the distinction
between deaf and hard of hearing people and secure the terminology
of each population.
1992
Convention is held in Cedar Rapids, Iowa. Dan Simmons of MA
is elected SHHH president of the board of trustees. I. King
Jordan, president of Gallaudet University, receives the “Walter
T. Ridder Award.” Joan Kleinrock of MD receives the
third Rocky Stone Humanitarian Award.
SHHH publishes its first Annual
Report.
The board of trustees expands
to 26 members from 17 states. (One slot on the board is always
reserved for a Stone family member.)
Some SHHH programs have included
a teen transition program, hospital services program, and
implementation of the ADA, noise awareness, oral interpreting
training, senior citizen program, teacher training, and research
into genetics rehabilitation.
SHHH Journal wins first place
in the 1991 Gold Circle Award for the most improved magazine
from the American Society for Association Executives. Barbara
(Harris) Kelley is editor.
SHHH has responded to inquiries
and requests from approximately 300,000 individuals –
an estimated ten times the number of persons (30,000) who
have joined since 1979.
Paid staff numbers 19 + ten
volunteers including a volunteer executive director. Office
departments include accountant, editor/publications, chapter
development, membership, development, meeting planner, and
business manager/board liaison.
National office acquires a
computer system. Customized membership database is installed.
There are 260 local affiliates
in 48 states representing approximately 8,500 volunteers.
There are state coordinators in 32 states.
Robert O’Connor of Denver
wins a member contest to design a 1992 Holiday Card which
is also used as the December Journal cover.
Board of trustees approves
the formation of State Associations and model bylaws for them.
SHHH Chapters and Groups
raise a $31,000 for Founder’s Day.
1993 During the 6th SHHH Convention in San Diego,
CA, Founder Rocky Stone formally retires as SHHH executive
director. Donna L. Sorkin of McLean, VA, becomes executive
director. Sue Miller, NY State receives the Rocky Stone Humanitarian
Award. The first Children’s Workshop during convention
is sponsored by Oticon 4 Kids.
March: A retirement dinner
(and fundraiser) for Rocky Stone is held in Bethesda with
100 people in attendance. Rocky speaks of the history of SHHH
and 10 people talk of their experiences in the development
of the organization including the first person to join Rocky
full time, Joan Kleinrock, chapter coordinator.
AT&T presents an unrestricted
check for $30,000 to SHHH.
A book, An Invisible Condition:
The Human Side of Hearing Loss by Rocky Stone, is published
by SHHH. It is a collection of editorials written by Stone
for the SHHH magazine.
A corporate sponsorship
program is initiated with 6 corporate members – each
joining for $2,500.
1994Convention
is held in Baltimore, MD. Julie Olson of WI becomes SHHH president
of the board of trustees. The first half-day research symposium
is a new and popular offering led by eminent physicians and
researchers.
SHHH receives the gift of a
sculpture of a family affected with hearing loss created by
artist member Jeannine Fletcher of Florida.
Board of Trustees finalizes
SHHH mission statement, which is incorporated into the SHHH
information and membership brochure.
SHHH moves to offices nearby
in an accessible high rise building and holds open house in
March.
Member survey is completed
providing data about members, their needs, and how they use
technology information.
SHHH is contracted by the Rehabilitation
Research and Training Center set up at the California School
of Professional Psychology to focus on psychological well
being and adjustment issues of hard of hearing and late-deafened
people.
Trustee Mark Ross, Ph.D., begins
writing SHHH position/policy papers on issues relating to
hearing loss. The first 3 are Cochlear Implants, Hearing Aids,
and Residual Hearing and Inclusion of Hard of Hearing Children
in Regular Classroom Settings.
With financial assistance from
Oticon, SHHH launches a Better Hearing for Life program to
increase awareness and understanding of SHHH and attract new
members.
SHHH receives an Advance America
Award from the American Society of Association Executives
for the Hospital Access 2000 Program.
SHHH is mentioned in a Dear
Abby column and receives 15,000 letters.
A booklet written by SHHH staff,
Hearing Loss: How to Get Help, makes its debut. (Project is
helped by a grant from ASHA)
Sorkin is appointed by President
Clinton to the Access Board.
SHHH is advisor to American
Airlines on improving air travel for people with disabilities.
Also, joining other organizations with people with disabilities,
SHHH submitted comments on airport access to the Dept. of
Transportation.
1995
Dallas, TX is the convention site. Miss America of 1995, Heather
Whitestone, the first winner with a disability of a profound
hearing loss, gives the keynote address and receives the Walter
Ridder Award. Bill Cutler, CA, receives the Rocky Stone Humanitarian
Award.
Board of trustees agrees to
decrease the number of trustees to 17.
Parade Magazine (Sunday’s
paper) runs a feature story on hearing loss using an interview
with Donna Sorkin – including a cover photo of her.
SHHH members and staff participate
in Advocacy Day on Capitol Hill, a day of educating elected
officials on the interests and needs of people with hearing
loss.
SHHH begins working with
the Cellular Telecommunications Industry Association to improve
access to cellular phones for hearing aid wearers.
1996 Eleventh
SHHH Convention is held in Orlando, Florida. Marcia Dugan
of New York becomes SHHH president of the board of trustees.
Mina “Sis” Lelewer receives the Rocky Stone Humanitarian
Award. (The event includes an evening at Disney World, where
with SHHH help, Disney World has begun communication access
for hard of hearing people.)
For recognition, trustees vote
to change the name of the SHHH Journal to, Hearing Loss: The
Journal of Self Help for Hard of Hearing People.
SHHH has 12,000 members. The
network of 250 groups and chapters involves some 9,500 members.
SHHH initiates a homepage on
the World Wide Web.
SHHH launches the Library Lift-Off
program in May – Better Hearing and Speech Month by
distributing 300 packets of information to members who will
work with their libraries to update/include materials on hard
of hearing people and improve communication access.
North Carolina is sanctioned
by the board of trustees as the first SHHH State Association.
SHHH joins other organizations
to ensure the new Telecommunications Act of 1996 includes
language requiring that services and equipment be accessible
to people with disabilities. SHHH takes the lead in publicizing
the interference problems of digital wireless phones and working
with engineers/ manufacturers.
Produced by SHHH and
the Johns Hopkins Center for Hearing and Balance, a video
titled The Telecoil: Plugging into Sound with an attractive
brochure, is distributed nationwide to increase awareness
and benefits of telecoils in hearing aids primarily among
hearing health professionals.
1997 Convention
is held in Phoenix, AZ. The “Walter Ridder Award”
is presented to keynote speaker Judith Heumann, assistant
secretary, Office of Special Education and Rehabilitation
Services. A new award bearing his name is presented to Dr.
James Snow, NIDCD director for efforts to advance research.
Dorothy Allen of NC receives the Rocky Stone Humanitarian
award.
400th participant is enrolled
in the SHHH Hospital Program for communication access.
Two books on hearing loss are
written by SHHH members and published by major publishers
(and sold by SHHH): Hear by Anne Pope and Keys to Living with
Hearing Loss by Marcia Dugan.
SHHH joins the National Technical
Institute for the Deaf (NTID) to address communication needs
of hard of hearing college students by developing materials
for educators.
SHHH provides input to the
U.S. Department of Education on the proposed rules affecting
children with hearing loss for the Individuals with Disabilities
Education Act (IDEA).
SHHH begins a Heroes with Hearing
Loss pilot mentoring program for adolescents ages 10 to 14
who will meet with young hard of hearing adult mentors (role
models) ages 20 to 30.
SHHH opens a National Center
of Assistive Technology, which operates on a grant from the
Johns Hopkins Center for Hearing and Balance.
SHHH works with Microsoft
Corporation to improve the quality and usability of accessible
(captioned) software.
1998 Convention
is held in Boston, MA. Marcia Finisdore of PA is elected SHHH
president of the board of trustees. George Kosovich, MD receives
the Rocky Stone Humanitarian award. Walt Disney World receives
an Access Award. A 40-person delegation of Zennancho, the
All Japan Association of Hard of Hearing People comes to the
Convention, and invites Donna Sorkin to Japan in the fall.
(Both organizations enter into a cooperative agreement.)
SHHH initiates drive to expand
insurance coverage of hearing aids by members working through
their employers.
February: First Leadership
Training weekend is held in Bethesda for 44 affiliate leaders
across the country. (This was sponsored by the AT&T Foundation
with a gift of $25,000.)
SHHH has 250 chapters and groups.
(150 of the affiliates are chartered chapters.) There are
coordinators in 31 states. (Joan Kleinrock, the first SHHH
Chapter Development Coordinator retires. She is replaced by
Marilyn Finn of CA.)
The board of trustees has sanctioned
7 state associations: NC, CA, FL, NY, WI, NJ, & WA.
SHHH begins an Advocates Program
with 150 volunteers forming the network.
SHHH supports National newborn
hearing screening legislation.
SHHH completes 12 position
policy statement papers.
Thanks to input from
SHHH, people with hearing loss are a large consideration in
the final guidelines published by the Access Board for Section
255 of the Telecommunications Act of 1996 (which has to do
with accessible telecommunications and closed captioned TV).
1999 Convention
is held in New Orleans, LA. Ahme Stone receives a 20th Century
Woman Award. Clyde Black of TX receives the Rocky Stone Humanitarian
award. The Opening Session features keynote speaker, Lord
Ashley of Stoke, England, a member of the Upper House of Parliament,
and the “only deaf member of any legislature in the
world.”
SHHH Executive Director Donna
Sorkin resigns to lead the A.G. Bell Association and Brenda
Battat is named acting executive director.
Board of Trustee National Committees
are: the Executive Committee, Finance, Long-Range Planning,
Nominating, (ad hoc) Steering Committee for Strategic Planning,
Children’s Issues, Support and Education, Government
Affairs, Membership, State Association, and Election Procedures.
SHHH is contacted by the planning
committee for the 2002 Winter Olympics to be in Salt Lake
City regarding access to the games for people with hearing
loss.
SHHH plays a significant role
in helping pass Congressman James T. Walsh’s bill for
the early detection, diagnosis, and intervention for newborms
and infants with hearing loss.
SHHH celebrates its 20th Anniversary
with a special November/December issue of Hearing Loss containing
articles on 20 years of SHHH progress and achievements, technology
history and conventions.
John Jaco, hired by the
board of trustees,begins work in October as the 3rd Executive
Director of SHHH.
2000 The
20th Anniversary of SHHH is celebrated in June at the 15th
National Convention in St. Paul, Minnesota. Susan Matt from
Washington State is elected SHHH President. Julie Olson of
WI receives the Rocky Stone Humanitarian Award.
During the convention the SHHH
Strategic Plan for 2001-2004, as presented by a team of diverse
SHHH members and endorsed by the board of trustees, is introduced
to the membership. It focuses on six areas, each with specific
goals: Information and Education Services, Community Based
Support, Advocacy, Marketing, Income Development and Financial
Resources, and Organizational Unity. A Transition Team is
formed to look at the SHHH structure with recommendations
to the board of trustees.
The SHHH mission statement
is simplified to read: “Our mission is to open the world
of communication to people with hearing loss by providing
information, education, support and advocacy.”
Better Hearing Australia hosts
the sixth congress of the International Federation of Hard
of Hearing (IFHOH) in July in Sidney, Australia. SHHH is a
member of IFHOH along with 44 other worldwide organizations
for people with hearing loss. Rocky Stone, SHHH Founder completes
a term as IFHOH President. Marcia Dugan of SHHH becomes Vice
President.
SHHH invites members to join
an Action Alert to advocate for hearing aid coverage by health
insurance for Federal Employees. (The Federal Employee Health
Benefits insurance plan is a model adopted by other insurance
plans.)
SHHH Deputy Director, Brenda
Battat, represents passengers with hearing loss with the Department
of Transportation and the airlines of America as they work
to accommodate increased and better access to air travel for
people with disabilities.
SHHH joins a coalition to push
for accessible digital wireless telephones for hearing aid
and cochlear implant users.
SHHH launches the first National
Day of Hearing Screening on Saturday May 6. Eight national
organizations collaborate with SHHH in this event sponsored
by five hearing aid manufacturers. Chapters and groups across
the U.S. set up 2,050 screening sites manned by local audiologists
to provide free hearing screenings. A total of 75,850 people
are screened.
Brenda Battat becomes
acting executive director in November when John Jaco resigns.
2001 Beth
Wilson, Ph.D of Rhode Island begins as executive director
of SHHH in April. She had been an active SHHH member since
1986 and left Raytheon Corporation where for 18 years she
was an electrical engineer.
Convention is held in Cherry
Hill, New Jersey. Over 1100 people attend the 16th year of
this event. The Keynote presenter is William Kennard, former
chairman of the FCC. SHHH presents Mr. Kennard with the SHHH
National Access Award. Dr. Mark Ross receives the Rocky Stone
Humanitarian Award. (Over the years, SHHH has developed numerous
oganizational awards, most of which are presented to individuals
and chapters and groups at an Awards Ceremony during the convention.)
The topic of the Eighth Annual Research Symposium is The Role
of the Brain in Hearing.
A Town Meeting is held during
the convention where the discussion focuses on the findings
of the Strategic Planning Transition Committee and recommendations
of the board of trustees. Several select committees study
ways to facilitate the strategic plan with a focus on election
procedures; transition funding that will unite the organization,
and inter-organizational relationships.
As part of the Strategic Plan,
SHHH initiates a State Office Pilot Program in 5 states. It
will run for one year to test the feasibility of state offices.
Brenda Battat, who has stepped aside as deputy executive director,
serves as director of the project.
SHHH revises and updates
the organization Web s ite adding many inter-active features
and more news from and about SHHH National activity.
2002 Early
in the year the board of trustees finds the financial health
of SHHH to be in jeopardy. The executive director Beth Wilson
resigns and several positions are eliminated including that
of the chapter development coordinator and the off-site meeting
planner. The remaining staff takes over the responsibilities
of these positions. The membership is asked to make contributions
to support the continued existence of SHHH.
The 17th National Convention
attended by more than 1,000 people is held in June in Seattle,
Washington. Ann Liming from Michigan becomes board president
and past president Marcia Dugan receives the Rocky Stone Humanitarian
award. The Research Symposium was sponsored and presented
by The National Institute on Disability and Rehabilitation
Research. Kathryn Stephens from the Maryland Association of
Nonprofits is retained as interim executive director while
the Board of SHHH focuses on the search for a new executive
director.
The Board of Trustees institutes
organizational changes: a) SHHH becomes an umbrella organization
offering non-profit tax exempt status to all local affiliates.
b) To achieve unity, there will be one membership dues to
SHHH national. Local organizations may not ask for or require
membership dues. c) Local entities will be SHHH chapters,
eliminating group status. A chapter will be recognized as
an SHHH entity when it identifies four members, agrees to
support the SHHH mission and abide by the SHHH bylaws. d)
Trustee slots will include representation from all ten regions.
Members residing in each region will vote for board candidates
from their region only as well as for the at-large candidates
via electronic means and paper ballots.
The committee searching for
a new executive director recommends four candidates. In December,
the board of trustees hires Mr. Terry Portis as executive
director.
SHHH has 13 state organizations.
Eight are associations with elected officers and four are
offices with an appointed director and a core group of volunteers.
(The state office pilot program begun the previous year is
very successful.) All are extensions of the national office
carrying out the mission of SHHH in the states.
Thanks to the generosity of
SHHH members, by the end of the year, the financial picture
of SHHH is greatly improved.
2003 SHHH
Executive Director Terry Portis sets organizational priorities
for the year based on our strengths. He pledges support and
resources for state organizations and local chapters. Attention
will be give to expanding the SHHH interactive website –
changed to www.hearingloss.org - unveiled in February as a
tool to help members feel connected to SHHH and as a cost
effective informational resource. The site receives 200,000
hits per week and will have 500 pages of information. Portis
also wants to increase partnership with other organizations.
He affirms the mission to make a difference in the lives of
people affected by hearing loss. Issues this year are communication
access in the community, health coverage for hearing aids
and cochlear implants, and employment issues.
The 18th National Convention
attended by 1,000 members (100 first-timers) is in Atlanta,
Georgia. Heather Whitestone McCallum, Miss America 1995 and
recent cochlear implant recipient, opens the Convention with
an address “Overcoming Challenges to Attain Your Dreams.”
SHHH Founder Rocky Stone presents Paul Hopler of Annandale,
Virginia with the Rocky Stone Humanitarian Award. Numerous
awards are presented to individuals, states, and chapters
at an awards ceremony. The Annual Research Symposium sponsored
by the National Institute on Deafness and Other Communication
Disorders focuses on cochlear implant research.
SHHH initiates an Annual Fund
Drive to raise $235,000 through appeals, challenges, and other
activities. Sue Miller of Rochester, New York chairs the drive.
(This goal is realized by year’s end.)
With Cochlear Americas as sponsor,
SHHH prints and distributes to 150,000 professionals and consumers
a booklet: Cochlear Implants and Seniors: When Hearing Aids
Aren’t Enough. SHHH also meets with Medicare to urge
Medicare conform to the FDA in eligibility criteria for cochlear
implants in adults.
SHHH begins to target those
states with poor Medicaid reimbursement rates for cochlear
implants in children.
SHHH establishes the National
Information and Training Center for Hearing Assistive Technology.
Support for the Center comes from manufacturers of hearing
products.
The Cochlear Implant Association
Inc. (CIAI) ends operation and negotiations are begun to integrate
CIAI into SHHH.
Hearing Loss is redesigned
and makes its debut with the Sept/Oct issue. The membership
brochure is also redesigned.
SHHH E-News – a twice
monthly newsletter for leaders and members grows to 1,200
subscribers.
The first state leadership
training, made possible by a grant from Sprint, is held in
Pennsylvania. The SHHH goal is to have leadership trainings
in every state.
SHHH is a pilot on a bill introduced
by Representative Jim Ryun, the Hearing Aid Assistance Tax
Credit Act, which provides a tax credit of up to $500 per
device toward the cost of hearing aids.
A few of the issues/organizations
SHHH works with are: the Coalition for Movie Captioning, the
Deaf and Hard of Hearing Accessibility Working Group (assistance
on access under Section 508 of the Rehabilitation Act), the
Federal Communications Commission (as regards rules/regulations
relevant to people with hearing loss) the Deaf and Hard of
Hearing Alliance (formerly COR) urging congress to fund infant
hearing screening programs. New is ITEM - Independence Through
Enhancement of Medicare/Medicaid - a coalition of 65 consumer
organizations that forms to ensure that hearing related needs
be part of policy changes and increased coverage for people
with disabilities and chronic conditions.
The letters sent by SHHH members
helps the action that defeats the withdrawal of the American
Standards Institute classroom acoustics standards.
SHHH has a lead role in an
FCC order to modify the Hearing Aid Compatibility Act of 1988
mandating that digital wireless telephones be compatible with
hearing aids.
SHHH joins the Congressional
Hearing Health Caucus Advisory Committee.
CapTel - a phone that provides
simultaneous voice hearing and text reading - are tested by
SHHH members and prove to be very popular.
As part of a Forum on
Interactive Voice Response Systems, SHHH brings over 200 member
responses on voice mail barriers to the Forum.
2004
The year’s advocacy
focus is on improving access to hearing aids, cochlear implants
and other technology. SHHH actively supports the hearing aid
tax credit bill, and works to increase reimbursement for cochlear
implants and to harmonize the Medicare criteria for implantation
with those of the FDA.
The 19th National Convention
is in Omaha, Nebraska. The keynote is an entertaining presentation
by Jim Fowler (and some of his wildlife), one of the world’s
best-known naturalists and former host of Mutual of Omaha’s
Wild Kingdom and other television shows. Mr. Fowler stressed
that we must “realize we are part of the earth’s
ecosystem, and learn to respect and live according to the
basic biological laws of nature.”
The Annual Research Symposium
sponsored by the National Institute on Deafness and Other
communication Disorders is titled The Inner Ear: the 21st
Century Frontier. Seven distinguished researchers present
their studies that go beyond gene recognition of hearing loss
to the next step which includes gene therapies. SHHH Founder
Rocky Stone presents Jerry Hohnbaum of North Platte, Nebraska
with the Rocky Stone Humanitarian Award. Richard H. Meyer
of Illinois becomes the new SHHH President.
The National Center for Hearing
Assistive Technology (NCHAT) receives equipment and financial
donations from several manufacturers. During the Convention,
on behalf of Cochlear Americas, Donna Sorkin, Vice President,
Consumer Affairs, former Executive Director of SHHH presents
a check for $10,000 to SHHH for NCHAT. Cochlear Americas also
sponsors the production of a booklet: Cochlear Implants and
Seniors: When Hearing Aids Aren’t Enough. This is distributed
to 150,000 professionals and consumers.
SHHH has 13 state organizations
in the states of CA, NC, NJ, NY, FL, WI, OR, GA, TX, MI, and
PA. Six states hold state or regional conferences. PA and
NJ hold leadership trainings. The conferences generate revenue
for the state organization, raise awareness of SHHH in each
state and bring in new members. Rather than conferences on
general hearing loss information, some states chose to focus
on specific topics such as assistive technology, employment
and leadership. State organizations are building coalitions
with other state agencies; representation on state advisory
boards is at an all-time high and states are involved in advocacy
efforts especially legislation to get hearing aid insurance
coverage.
On August 13, just a few months
short of our 25th anniversary, SHHH Founder and Executive
Director emeritus Howard E. “Rocky” Stone dies
following complications from pneumonia. Hundreds of tributes
from all around the world are expressed reflective of his
distinguished 25-year CIA career and his humanitarian work
for people with hearing loss and other disabilities. He was
79 years old. An endowment fund is initiated in his name.
The November/December issue
of Hearing Loss is a 25th anniversary tribute to SHHH and
its founder Rocky Stone. It includes an article by past President
Patricia Clickener: SHHH 25 years and Still Growing, A Flashback
to 1979, and Earlier. Ms. Clickener reflects on the growth
of SHHH along with the amazing advances made for people with
hearing loss.
In November SHHH launches a
promising trial run of a new Patron Membership which gives
people the option of sending in an additional $10 with their
membership dues which is reimbursed to their local chapter.
SHHH hopes this will promote membership among chapter participants
who are not SHHH members, and further promote the concept
of “one SHHH membership.”
Dr. Portis, Executive Director
announces that the last few months of the year show the greatest
membership renewal in our history. We now have over 10,000
active, paid national members. This is a five year high for
membership. (The highest membership count was in 1997, with
just over 11,000.) In addition there are another 4-5,000 participating
only at the local level.
The SHHH website averages over
1 million hits per month and is generating revenue for the
first time. It contains nearly 500 pages of information including
a new online bookstore.
SHHH meets the $250,000 Annual
Fund goal with 3,000 people – a record number of donors
- giving to SHHH.
2005
In February, SHHH Deputy Executive Director Brenda Battat
received a 2005 Oticon Focus on People Award for her outstanding
advocacy work on behalf of people with hearing loss. Oticon
awards honor hard-of-hearing people who prove that hearing
loss does not limit a person's ability to live a full, productive,
and even, inspiring life.
In March, two booklets for consumers about cochlear implants:
When Hearing aids Aren’t Enough (revised) and Questions
to Ask Your Surgeon are mailed to 25,000 professionals and
10,000 randomly chosen consumers. Bulk mailings of the publications
are also sent to other groups such as BHI, AARP, cochlear
implant clinics and all SHHH chapters and state organizations.
The project is sponsored Cochlear Americas.
Prior to the July 4th celebration, the 20th International
Convention is held in Washington DC. It commemorates the
25th anniversary of the founding of SHHH. During the Convention,
the Stone family holds a Memorial Celebration of the Life
of Rocky Stone. At the organization’s banquet, the
Howard E. “Rocky” Stone Humanitarian is awarded
to Alice Marie (Ahme) Stone, the beloved wife of the founder.
Award-winning singer songwriter Mary Sue Twohey performed
a lovely “Ode to Rocky Stone.”
A 2005 SHHH Telecommunications Access Award is presented
to FCC Commissioner Michael Copps following his presentation
on the progress in telecommunications accessibility for
people with hearing loss. At the 12th Annual Research Symposium,
leading scientists shared the results of their research
into the developments in stem cell research and hearing
loss.
With the integration of the Cochlear Implant Association
Inc. (CIAI) into SHHH, Hearing Loss magazine introduces
“Cochlear Implants: Today and Tomorrow”, a section
of each issue of magazine devoted to cochlear implants.
In September SHHH responds to the devastation caused Hurricane
Katrina by establishing the hear2care project. SHHH serves
as a depot for donations of money, batteries, hearing aids
and assistive devices to be distributed to victims. Several
hearing health related businesses and organizations provide
services along with donations.
During the year, membership is enhanced with the addition
of several benefits to including discounts with car rental
agencies, Best Western Hotels, and Costco stores.
In the fall, the first class of the American Academy of
Hearing Loss Support Specialists launches. The Academy is
a self-paced online, distance learning certificate program
designed to build knowledge about hearing loss, increase
understanding, improve services and enhance the professionalism
and credibility of people in diverse professions who provide
support services to people with hearing loss and their families.
During the November 2005 Board of Trustees meeting, the
board votes to change the name of Self Help for Hard of
Hearing People to the Hearing Loss Association of American.
Richard Meyer, president of the SHHH Board of Trustees stated,
“This strategic decision is a significant milestone
in SHHH’s 25--year history. While remaining committed
to the vision of founder Rocky Stone, SHHH is evolving to
best meet the needs of people with hearing loss today and
in the future, continuing to be a pioneer in advocacy and
support for consumers with hearing loss.”
Terry D. Portis, Ed. D., executive director of SHHH stated,
“SHHH needs to position itself to meet the needs of
a new generation of people with hearing loss while continuing
to serve the constituents who rely on us today. I believe
that by updating our name and image we will be better able
to communicate our message and fulfill our mission. SHHH
expects to complete the transition to the Hearing Loss Association
of America in March 2006.”
Editor’s Note: This history
of SHHH is not a complete account of all data or a complete
listing of all pieces of legislation SHHH had input to. However,
it is an informative sketch of some of the major highlights
of the organization.
August 1999 (updated February 2006)
By Joan Kleinrock