New Mexico Adopts 45-Day Trial Period for Hearing Aid Purchasers
(Albuquerque: Monday, April 19, 2010) In response to an initiative originating with the board of directors of the Hearing Loss Association of Albuquerque (HLAAbq), the Speech-Language Pathology, Audiology and Hearing Aid Dispensing Practices Board approved two revisions to the rules that apply to hearing aid dispensing practices in New Mexico at their April 16, 2010, meeting.
Under one of the changes, hearing care providers will now be required to give customers a 45 day trial period after the purchase and fitting of new or used hearing aids during which, at any time, the customer may return the devices for a full refund less a nominal agreed to fee. Another new rule requires that the refund be made no more than 30 days after the return of the hearing aids.
New Mexico has been one of 20y states that had no mandated trial period but it now joins the majority that require one that varies by state from thirty days to as many as sixty. New Mexico mirrors Minnesota, New York and Vermont with the 45-day stipulation and Maine allows up to 60 days under certain conditions.
The great majority of New Mexico's dispensing audiologists and hearing aid specialists (dispensers) note at least a thirty day return policy in their contracts but some do not. The latter group has caused considerable dissatisfaction with some dispensers by the public. Complaints are regularly heard at HLAAbq meetings and elsewhere that some New Mexico dispensers gave customers verbal assurances that they could return their hearing aids for a refund during the first 30 days but then did not honor that commitment and, with nothing in writing, the customer in those cases often had no recourse and did not get a refund. Others gave unclear written assurances with a thirty day "satisfaction guaranteed" clause in the contract but, when clients attempted to return the hearing aids for a refund, they were advised they could return the units and have them replaced with a different style or model but not receive a refund.
As there is no state HLAA organization in New Mexico, the Albuquerque Chapter has been vigilant for hearing care issues that need to be addressed and acts as an advocate for the hard of hearing throughout the state. In another recent action, they worked with the national HLAA office and the state licensing board in making arrangements for HLAA's American Academy of Hearing Loss Support Specialists™ online course to offer continuing education credits that can be applied to license renewal requirements in the state.
These new rules will go into effect 30 days after being processed by the state which means they will be in effect around June 1. Questions concerning these or other licensing requirements for the dispensing of hearing aids in New Mexico should be directed to Ms. Vadra Baca, team leader [Vadra.Baca@state.nm.us or 505.476.4890], NM Board of Social Work Examiners, NM Speech, Language Pathology, Audiology and Hearing Aids Dispensing Practice Board, Toney Anaya Building, 2550 Cerrillos Road, Second Floor , Santa Fe, New Mexico 87505.
Looking for Revenue to Fund Your Newsletter?
The Albuquerque Chapter started requesting donations to fund their newsletter when they were unable to find anyone willing to "sell" ads. It started out small but now brings in more revenue each year than the group receives in membership dues. The Oklahoma Chapter apparently has followed this model.
South Coast Chapter: Earth Day Tour at Bolsa Chica for Hard of Hearing Friends
"What a great way to celebrate Earth Day by learning about and appreciating our Earth," stated Lorraine Fanizza, president. "The walk was easy and our Amigos de Bolsa Chica Docent Tour Guides used our transmitter's microphone so that those with receivers could easily hear. Our guides made learning about the area very interesting and clear how important that area was for our nesting and migrating birds and other inhabitants. Later participants received beautiful brochures with information and pictures about the local birds and more.
Over 25 people participated. The daughter of one of the trip organizers makes neckloop pocket talker-type assistive listening devices and gave them to those that wished to use them. Also, over half of the people there had their own assistive listening devices, so they were able to participate fully in the tour.
"Socializing with other hard of hearing people gives us increase knowledge about our hearing loss, more confidence, and an opportunity for special friendships," Fanizza added.
HLAA State and Chapter Award Recipients
The judges have spoken! HLAA received roughly 40 nominations for the 2010 awards. It was no mean feat to determine recipients from among the excellent pool of candidates. The recipients will receive their awards at the Awards Breakfast, sponsored by Oticon, at the 2010 HLAA Convention in Milwaukee, Sunday, June 20. The HLAA Awards are designed to showcase states, chapters and individuals that exemplify the mission of HLAA – to open the world of communication to people with hearing loss. Thanks go to everyone that submitted a nomination. Congratulations, recipients!
2010 AWARD RECIPIENTS
Chapter Newsletter Award
HLAA Bucks County, Debra Cannon, Ed.
Chapter Website Award
HLA - Diablo Valley, Debbie Sharp, Ed.
Chapter/State Advocacy Award
Bea Lyons, Chattanooga Chapter
Stephen O. Frazier, Albuquerque Chapter
Community Service Award
Ann Thomas, HLA – Diablo Valley
Debbie Sharp, HLA – Diablo Valley
Family Involvement Award
Danny Tubbs, Glendale, CA
HLAA Service Award
Ron Vickery, Rome, GA
Professional Advisor Support Award
Carol Clifford, NM
Spirit of HLAA Award
Raegene Castle, Peninsula (CA) Chapter
Molly Corum, Tampa, FL
State Newsletter Award
Hearing Loss Association of Florida
Judy Martin, Ed.
State Organization Award
Hearing Loss Association of New Jersey
Arlene Romoff, President
State Website Award
Hearing Loss Association of Georgia
Cathy Fletcher, Director and Webmaster
The HLAA Awards are designed to showcase states, chapters and individuals that exemplify the mission of HLAA – to open the world of communication to those that are hard of hearing. Thanks go to everyone that submitted a nomination. Congratulations, recipients!
04-02-2010
What One Chapter Did When the Speaker Did Not Show Up!
It was snowing and blowing the night of the Manhattan (NY) Chapter’s February meeting. Half the usual attendance – 22 people – did make it but neither the scheduled speaker nor the CART reporter were able to come.
“But,” writes Anne Pope, “we were inventive, putting into effect all the strategies we customarily use – phrasing things differently and using pencil and paper, as well as the more technologically hip laptops, personal FM systems passed around, and even an I-Pod with a dictation application.
“We went back to our organizational roots that night – we shared strategies and stories on the difficulties we have confronted, how we have advocated for ourselves, and what we have done that has kept communication flowing. We enjoyed this impromptu rap session, and several people suggested that this should be a regularly scheduled format once or twice a year.”
HLA of Oregon Brings Access to Medical Services
One committee of the Oregon State Hearing Loss Association advocates for improved accommodations for people with hearing loss in medical facilities. Committee Chair Bob Williams writes that they have made great progress working in concert with Samaritan Medical Services whose hospital and clinic system serves five communities with a new medical school opening in 2011.
The Winter 2010 Here It Is newsletter of the Oregon Chapter includes a report from the director of professional development for Samaritan Health Service (SHS) which reads in part:
“During 2009 SHS worked with HLA of Oregon to learn more about the hearing loss needs in our community. The suggestions and experiences communicated to us throughout the process have been invaluable to SHS. We will put this information o use in the development of improved services and resources for our clinics and hospitals.
“Our hospital nursing leadership reviewed sample information and resource kits. As SHS is moving toward electronic charts, the resource materials are being customized to be available online. Online availability allows staff to readily access information and tips on communication, operating hearing aids and troubleshooting. We are in the process of reviewing resources appropriate to the clinics as well.
“Computer charting at SHS provides a place to document the specific patient needs for communication and assistive devices for hearing loss. The patient’s preferred method of communication will be documented here as well. It is available for all caregivers to review. We encourage each patient, family member or friend to communicate their needs for accommodation. Part of the training for staff will include increased knowledge of the new resources, as well as reminders of TTYs and availability of American Sign Language interpreters if needed. Currently, assistive listening devices are in place and more options are being added.”
Win a Cruise for Two to the Caribbean and Help Your Chapter, Too!
The Hearing Loss Association of Florida's Board of Trustees has made available raffle tickets for a $10 donation to raise funds for your chapter needs. The prize? A week's cruise for two on the RCCL Freedom of the Seas, sailing out of Port Canaveral on October 17, 2010. Two thousand tickets have been printed so your chances of winning are much, much better than winning the lottery. HLA-FL's goal is to encourage you sell as many tickets as possible. Chapters receive half of every ticket they sell so it can really add up if you approach family members, friends, churches, clubs, etc. The success of raising money for your chapter will depend on your enthusiastic sales!
The cruise is worth $1,800 and includes all port charges, government fees and taxes. Each chapter leader has received tickets to sell. If you need more, please ask. We hope you will find this an easy way to earn money for your chapter as well as help us with funding Hear Ye, Hear Ye, the state newsletter. This fundraiser donation of ticket sales is not limited to Florida residents, so sell them to out-of-state friends and family too! Just remember to keep track of all pertinent info so we may notify the winner in July. All unsold tickets must be returned before July 5th, 2010. Any questions may be sent to Lynn Rousseau at HLAFlorida@aol.com.
(From the Hearing Loss Association of Florida E-Newsletter - March 2010)
Albuquerque Chapter Participates in Expo
Chapter Secretary Betty Newman (shown below) was one of the volunteers at HLAAbq’s booth at the 50+ Celebration sponsored by Prime Time Monthly and held at the Embassy Suites Hotel on March 13, 2010.
Roger Proctor and Steve Frazier also worked the booth and Chapter Treasurer Eleanor Strout stopped by after the regular West Side chapter meeting to also lend a hand. A TV/VCR combo was set up to demonstrate the use of loop technology with telecoil equipped hearing and a very comprehensive supply of literature was available on topics ranging from cochlear implants to low cost hearing aids. Chapter newsletters, Hearing Loss Magazine and other material was also on hand.”
Judge Calls Attorneys “Jerks”
The San Francisco federal court of appeals was packed one January day with people with visual and hearing impairments. They wanted to hear oral argument about whether a lawsuit can go forward against Harkins Movie Theatres, an Arizona chain that refuses to provide captioning or audio description after dismissal by a lower court arguing that neither the Americans with Disabilities Act (ADA) or Arizona State law require either.
The three appellate judges hearing the case demonstrated a keen interest in the issue and grilled the lawyer for Harkins why his company didn’t just “do the right thing” and provide the technology to allow people with disabilities to enjoy movies. Judge Alex Kozinski said, “The attitude does not strike me as a generous approach.”
The judges seemed impressed with the ease at which real time captioning and sign language interpretation were provide to accommodate the audience – wondering out loud why, if the court could provide this accommodation, a technologically sophisticated movie chain count not. The judges also noted a brief filed by the Obama administration Justice Department in support of the argument that captions and audio description are “auxiliary aids and services” under the ADA.
Judge Kozinski probed the theater’s argument that deaf and blind movie goers are as few as anyone else to sit through a movie without captioning or description. He compared that type of reasoning with now-discredited claims that it is acceptable to force people who use wheelchairs to be carried up the courthouse steps.
The Judge said, “You are going to lose eventually. I don’t know if you are going to lose this case or not, but you are going to lose this battle in the end. You can get out in front of it and be the good guys, or you can be dragged kicking and screaming and look like jerks. I don’t understand why you are choosing to fight this battle…This is a case where lawyers can be healers rather than warriors.”
[From the San Fernando Valley Hearsay newsletter, February 2010]
01-26-2010
New Mexico residents please note there is an urgent meeting on February 1, 2010, involving people with hearing loss in New Mexico
The leadership of the Hearing Loss Association of Albuquerque (HLAAbq), along with their counterparts in both the deaf and the blind communities have taken a position in opposition to a recommendation of the Finance Committee of the New Mexico legislature that could impact on any and all in the state who have a disability or are close to someone. The recommendation calls for the state to investigate the consolidation of three separate agencies offering services to the disabled into one "super" agency to possibly provide some financial savings and improve efficiency.
In the case of the HLAAbq, the leaders feel their community would not receive the same quality of service from such a combined agency. They are also concerned about the understanding and oversight from a commission that is not made up entirely of hard of hearing and deaf commissioners and specialists in hearing loss issues as is the Commission for Deaf and Hard of Hearing Persons. It's also the feeling of the Albuquerque HLAA leadership that the size of the hard of hearing population (estimated to be 17% of the public nationally) merits an agency devoted exclusively to its needs and concerns.
The three agencies are the Governor's Commission on Disability, the Commission for the Deaf and Hard of Hearing and the Commission for the Blind. There is talk of the legislature taking some form of action on the proposal during the current thirty day session . The Governor's Commission is holding a meeting and public hearing on the matter on February 1 before taking a position on the recommendation
A delegation from the Albuquerque chapter will join deaf and blind individuals in testifying against the recommendation at the hearing on February 1 at 10 a.m. in the Tony Anaya building in the state's capital of Santa Fe.
11-03-2009
Joan Andrews Scholarship Award Available to Florida Members
The Hearing Loss Association of Florida announces the second annual “Joan Andrews Scholarship”. Joan Andrews, former president of the Florida Association of Self Help for Hard of Hearing People, now known as the Hearing Loss Association of Florida, worked tirelessly to improve the quality of life for individuals with hearing loss. The Scholarship will be awarded to an individual who demonstrates in writing (by completion of the application process) a sincere educational interest in and commitment to sharing the mission of the Hearing Loss Association with others affected by hearing loss. The Selection Committee will give priority consideration to an applicant who meets all the criteria as set forth in the application process AND who cannot afford to attend the HLAA convention without the assistance of this scholarship.
SCHOLARSHIP DESCRIPTION: The scholarship will entitle the winner to a registration to the Hearing Loss Association of America Convention 2010 in Milwaukee, June 17-20. The scholarship will also include a room at the convention hotel for three nights and round trip airfare or automobile travel expense between Florida and Milwaukee, WI. The maximum value of the scholarship is $1,000. The winner is responsible for making all travel, hotel and convention registration arrangements.
ELIGIBILITY: An applicant must be a Florida resident and member in good standing of the Hearing Loss Association of America. Current members of the HLA-FL Board of Trustees are not eligible.
The deadline for receipt by HLA-FL of the completed application is March 15, 2010. For more information and/or to receive an application, please contact Joan Haber, Scholarship Committee, joan1@comcast.net or call 941-921-9197.
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Hearing Loss Association Celebrates its 30th Birthday Along with Many Chapters Across the Country
As the Hearing Loss Association of America (HLAA) celebrates its founding 30 years ago in November 1979 (founded as Self Help for Hard of Hearing People), we offer congratulations to the many HLAA Chapters that have worked diligently and are enjoying continued success well into their second decade.
California’s Long Beach/Lakewood Chapter is one such example that began in 1986 – 23 years ago and is still going strong. Monthly meeting attendance averages 46 members including four to eight guests per meeting. There are five Chapter officers plus active committees and a full newsletter crew.
Each November, when we all give pause to reflect on our beginnings on Founder’s Day, this Chapter holds its annual Founder’s Day raffle. The Chapter newsletter The HLA Informer sends this message:
“When we celebrate Founder’s Day, we are taking the opportunity to not only reflect on how HLAA got started nationally by Rocky Stone, but how Rita Williams and Angie Wentz started our own prosperous group. They, like many other groups were helped by National to get stated. So, in return, Rita and Angie started holding a raffle to collect money to send back to National, so that other groups may benefit and enjoy the knowledge of learning how to cope with a hearing loss. It’s time for you, our members, to look for those store sales, finish that lovely craft item, decide what favorite cookie recipe your going to bake, design a lovely floral arrangement or plant from you green thumb’ers and/or pass on a new unused gift that you received that just doesn’t say you, but may say ‘me’ to someone else. Many local companies also donate gift certificates or their products.”
HLAA wishes you all a fun and very successful raffle! “
08-11-2009
Florida News
The Florida Academy of Audiologists (FLAA) and the Hearing Loss Association of Florida (HLA-FL) boards have agreed to join forces to reach out to members of both associations so that each can have a better understanding of each other’s goals and programs and how they can work together.
To begin, some of HLA-FL board members will attend the FLAA annual convention in August at Palm Beach Gardens. Further, articles will be exchanged for their respective newsletters – the Advocate and Hear Ye, Hear Ye. Noel Crosby, president of the Academy, will be gathering information on how we view audiologists and what they can do to better serve the needs of those with hearing loss.
This would be a good time for you, our readers and members, to express your opinions to us. Some of our board members will be invited to speak at regional FLAA seminars discussing these very subjects. Conversely, FLAA plans to provide a speaker for one of our board meetings. This collaboration had been a dream of Board Members Joan Haber and Kathy Borzell for some years. Now that it is happening, everyone is excited at the possibilities of this relationship.
From Hear Ye, Hear Ye, Hearing Loss Association of Florida News, July 2009.
06-26-2009
COME HEAR THE SOUNDS OF THE CARIBBEAN!
The Hearing Loss Association of Florida invites you aboard RCCL's
“FREEDOM OF THE SEAS”
Sailing October 17, 2010
Dear HLAA Members and Friends:
Please keep in mind that one does not have to have a hearing loss to sail with us. So invite all your friends and family to come along. I guarantee this ship is large enough to accommodate everyone you can think of. Orlando airport has shuttles to the ship and back if arrangements are made ahead of time.
And speaking of accommodations -- Royal Caribbean made everything communication accessible to us last time, with captions for live performances, listening devices that worked, and well-trained crew members who made sure we were able to enjoy every moment. And this is the ship that hosted the first-ever all-Deaf cruise. So start your planning now, and start saving your pennies.
By the way, cruising is the best vacation value anywhere. Your hotel goes with you to exotic places, all your meals are included, and you can do as much or as little as you like. Best of all, we will all be laughing and playing together!
Check out the attached brochure, and see if you can resist! And please pass this along to anyone you might need a little paradise in their life. Extra perks are included ~ look closely!
Please email Lynn Rousseau to request a brochure for prices, dates and accommodations.
05-19-2009 The Chapter Challenge
The Montgomery County (MD) Chapter issued a challenge to other chapters to fund young adults to HLAA Convention 2009. The call has been answered! The Montgomery County Chapter gave $500 earned from the 2008 National Capital Area Walk4Hearing and challenged others to match or exceed their contribution.
The following HLAA Chapters have met the challenge and are helping young adults who may not otherwise be able to attend a national HLAA Convention. Thanks to all these chapters who are investing in the future leaders of HLAA.
Greater St. Louis Chapter
Pennsylvania State Office
Northern Virginia Chapter
Longmont Walk4Hearing (Colorado)
Denver Chapter
Los Angeles Chapter
05-05-2009 May 2009 is Better Hearing and Speech Month
An outreach flyer for chapters is ready. This is an opportune time to spread the word about hearing loss in your communities and states. We’ve uploaded a document on the leaders’ list for you to use however you want – local press, health fairs, church newsletters, or other organizations that you belong to. We’ve left room for HLAA chapters and states to add their contact information
HLA-Montgomery County, Maryland, Issues a Challenge!
The Montgomery County Maryland Chapter of HLAA issues a challenge to all chapters and state organizations to help bring more young adults to HLAA’s Convention 2009.
The Montgomery County Chapter wants to help send more young adults to the HLAA Nashville Convention. This year, over 20 people applied for the Rocky Stone Scholarship. The scholarship is awarded to members who have never been to a convention, and who need support to attend. Each year there are three scholarships awarded. The Montgomery County Chapter is giving $500 earned from our local Walk4Hearing to help support the Rocky Stone Scholarship.
But we know that’s not enough, so, we are issuing a challenge to all chapters and state organizations that are able to help send 20 of these applicants to the Convention!
Many chapters and state organizations, like us, have funds raised through the Walk4Hearing. Some are already using that money to send local members to the Convention. That’s great. But for those who have not considered this project or those who can afford to do more, contributing to the scholarship is a perfect way to really help individuals with hearing loss.
If you remember what it felt like to attend your first convention, you know that this is a worthwhile way to spend those Walk4Hearing funds. It’s an opportunity to bring someone the information and education they need learn to live better with their hearing loss. We don’t have to tell you all the benefits: it allows them to grow personally and professionally, gives them an opportunity to socialize with other people who are hard of hearing, learn about cutting edge technology in the exhibit hall, and attend workshops where all of the information is accessible via CART and listening systems. All that newfound education and information goes back home with them to help make a more accessible world. And, those people may even become part of the next generation of HLAA leaders!
Spending $500 on the next generation sounds like a good deal to us. How about you?
The Steering Committee
HLA-Montgomery County
Rockville, Maryland
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Captioning Makes the News in New York
According to long time advocate, Ruth Burnstein, the new Yankee Stadium has captioning (CART) thanks to the work of Ed McGibbon, Janice Schacter and other advocates. Here's a description of that innovation by Ben McGrath from this week's New Yorker (April 27, 2009):
"…from the perspective of one fan in the press box, where the seats are free, the new Stadium experience did offer some unexpected pleasures, such as the running manuscript, on a couple of the outfield scoreboards, of the new P.A. announcer's remarks (Bob Sheppard, the ninety-eight year old mainstay, has fallen ill with a bronchial infection.) Baseball has long been a game of records, and the transcription service introduced a new level of historical certitude, for instance, to the crowd reaction during the pre-game introductions. For the Indians' Carl Pavano, a former and unloved Yankee, there was this: "No.44, Carl Pavano (crowd boos)." On the home team's side meanwhile, the digital display provided a clear delineation between the stars and the also-rans:"No.42, Mariano Rivera (cheers and applause)." Poor Marte. He would go on to yield six runs in one inning of relief work, confirming the fan's suspicions and now, it appears, we will have an official record of when, if ever he earns his pinstripes in the public's estimation.
“For an inning or so, the scoreboards even ran transcripts of the televised broadcast so that everyone sitting in the sun was included in the relentless memorializing of Stadium firsts for the stay-at-home crowd. (That's a broken bat, "the broadcaster Michael Kay apparently said after Johnny Damon broke his bat. First one at the Stadium.') Then the text gave way to a Modell's ad, and the fan, sensing doom, decided to vacate his seat for a tour of the concessions, intent on finding the best bargain while the game was still close and the lines still short."
04-21-2009 Chapter Development Workshop at Convention
Friday, June 19, 2009
1 p.m. to 3 p.m.
How to Start a New HLAA Chapter
Hear the ABCs of how to begin. Get answers to your questions. If you don’t have a chapter in your community and would like one, please attend this workshop. You can do it! Also welcome are current chapter leaders to share ideas.
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Report from the Arizona State Coordinator
HLAA state coordinators work to develop and support chapters in the state. Ginny Clark-Wright is an industrious state coordinator in Arizona. She gives us a snapshot of what is happening in Arizona. It sounds like an exciting state to be a part of.
Fountain Hills: The chapter is doing well. They have had terrific programs this year and the attendance has been good each time. It helped that Executive Director Brenda Battat gave a wonderful presentation on HLAA National and what it has been doing. This chapter is fortunate to have pro-bono CART services.
Phoenix: Joe Vaz is stepping down as president of the Phoenix Chapter. As of now, I have been asked to serve temporarily as a chapter leader to help get the Chapter "reorganized" and running smoother. Chances are that the Chapter will be relocating to another section of Phoenix. I will keep you posted.
West Valley: They have had great programs and attendance during the year. Effort was made to have pro-bono CART services, but they ran into a challenging issue. Then they were notified to relocate after being in that setting for nearly 15 years. They had their second meeting at a Life Care Retirement center last week. So far, so good, but they do not have CART service as yet.
Prescott: It looks like an HLAA Chapter will be in the making here before the summer begins. Over 40 people were present last Saturday. Jack Clevenger and Janice Woodson are doing a great job. I encouraged Jack to get onto the HLAA Leadership Bulletin Board - so he can interact with other leaders. Janice has been a tremendous help too.
Yuma: These members are really trying hard to get organized and I will be attending their meeting in April and hope the “Chapter Intent” form is taken care of.
Wickenburg: This is another area that has interest but I want to learn more. Sharon Krantz indicated interest in helping it start but not in a leadership role. We met with a church administrator who may provide a meeting place at no charge.
Oro Valley: We are working on this area and getting a Chapter going. This is a community just northeast of Tucson. It is likely that we will get this going in the fall.
04-07-2009 Debbie Schaaf Appointed Ohio Chapter Coordinator
Debbie Schaaf has been involved with HLAA since 2002 and has served as chapter president for the HLAA Wayne and Holmes County Chapter for the past five years. She was born with a hearing loss due to her mother having Rubella (German measles) and received a cochlear implant in 2001.
Debbie is a teacher at a local day care center. She lives in the country with her husband, Gene, and her dog, Cory. Debbie says, “The most important thing is to never give up and there is hope to learn to hear again.“
The role of the state chapter coordinator is to initiate and coordinate the development of new chapters and give advice, support and strengthen existing chapters. The state coordinator is an extension of the Chapter Development Office of the national Hearing Loss Association of America. If you need information about a chapter in Ohio, or would like to start a new chapter in Ohio, email Debbie Schaaf.
03-23-2009 Valentine’s Day at the Tacoma, Washington, Chapter
Michael Rocke, a Tacoma (WA) resident and the local leader of a national organization called Hands & Voices visited the Tacoma Chapter on Valentine’s Day. Hands & Voices provides help for children with hearing loss and their often unprepared and confused parents.
Michael showed a short DVD, told his personal story and described how Hands & Voices operates. Hands & Voices is “a nationwide non-profit organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them. They are a parent-driven, parent-professional collaborative group that is unbiased toward communication modes and methods. Their diverse membership includes those who are hard of hearing, deaf, and their families who communicate orally, with signs, cue, and/or combined methods. They say, “We exist to help our children reach their highest potential.”
Hands & Voices has 18 chapters across the country and another 20 in the formative stages. This is a young but rapidly growing organization with an interesting history. Visit www.handsandvoices.org. Perhaps there is a chapter in your area that can provide a meeting speaker for your HLAA chapter meeting.
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Remembering Allan Weinberg, Philadelphia Chapter
Submitted by Chapter Member Carolyn Meyer
March 23, 2009
The members of Philly 1 (HLAA Philadelphia #1 Chapter) mourn the passing of our devoted chapter president and caring friend, Allan Weinberg. He was an inspiration to us to carry forth with our lives despite our hearing loss. The chapter’s outreach program, “Coping with Hearing Loss,” was always a priority for him. Audiences were receptive to his kind words as he gave them encouragement to continue with their daily lives to the best of their ability.
Allan loved to travel all over the world and never let his own hearing loss stand in the way. We admired him for this courage. When he returned from his trips, he would lecture at the JCC Klein Branch to a most receptive audience. Allan was a school principal and language arts specialist who had so many friends and a wonderful supportive family. We shall miss him at our chapter meetings. He always arrived looking dapper as we straggled in through the winter nights not always looking our best! We would look at him and know that we were special to him.
Chapter members will memorialize him with a contribution to HLA-PA and by continuing his efforts in outreach to people with hearing loss the way he wanted. We have chosen to call this the “Weinberg Chapter Philly #1 Outreach Program” with the hope that we, not only will reach people who have hearing loss, but will train staff with normal hearing to improve communication with people with hearing loss. Once a year we will select The Weinberg Memorial speaker for our chapter meeting to honor his memory. One of Allan’s favorite phrases was” good food and good company, what more can you want?” Although we will no longer have our beloved Allan’s company, he will always remain in our hearts.
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Looking for News from HLAA National?
Read "This Month in Bethesda"
National HLAA wants to reach more members and provide them with an overview of national activity. “This Month in Bethesda” is a monthly report from Executive Director Brenda Battat. It is sent to all leaders, and we ask that you share it with chapter members in a manner of your choosing; reading all or portions of it at meetings and using some or all of it in newsletters and/or websites.
03-09-2009 Albuquerque Chapter Member Betty Meador’s story about communication access makes headlines.
Saturday, February 21, 2009 Woman Finds a Way To Hear (See) Word of God
By Kate Mcgraw, Albuquerque Journal
Betty Meador started losing her higher-frequency hearing early in life. She realized it was gone in her early 20s because a DJ on KOB-radio used to play a recording of canaries singing and s he could never hear it.
In the 1950s, Dr. Bennett Roberts in Albuquerque told her she had a form of nerve deafness. At the time, no hearing aid could help.
Betty persevered, learning to read others' speech and creating a career with the New Mexico Legislative Council Service that allowed her to work autonomously and use writing to back up her communications. At home, her children and grandchildren learned to get her attention before talking to her. Life was OK, even without the hearing aids that later brought some sound back to her.
Church, though … church was a misery. “I could only read what was in print. I never heard the announcements or the sermon or the prayers,” Meador told the Journal recently. “The loop system, which is helpful to many people with properly equipped hearing aids, provides sound that is not enough for me.”
Meador is a combination of stoicism and activism. What must be endured, can be, is her motto — but first see if something can be improved. She had joined the state and national association for those experiencing loss of hearing later in life, Hearing Loss Association of America (HLAA). At one of the national meetings, Meador learned about Computer-Assisted Real-Time Translation, called CART. It's a program of the National Court Reporters Association.
CART is the instant translation of the spoken word into English text using a stenotype machine, notebook computer and real-time software. The text appears on a computer monitor or other display screen. Court reporters take special training to be certified as CART providers. Also sometimes referred to as real-time captioning, CART is used primarily in schools and other public institutions where real-time captioning enables students to “hear” the lecture at the same time as the rest of the class.
But Meador learned that two Albuquerque HLAA members had provided it for their church. She asked the Rev. Bethany Carpenter if she could pursue a CART project for her church, Zia United Methodist Church in Santa Fe.
Bethany was quite excited about it,” Meador said. Meador found funding through an anonymous donor who attends the church regularly and her Albuquerque HLAA friend, Mary Loughran, located a CART-certified court reporter in Santa Fe, Lisa Danner, who agreed to a trial project at a discount from her usual $150-per-hour fee. Danner, a member of Temple Beth Shalom, charges Zia's grantor $100 for a full Sunday-morning service.
“This is one direction that court reporting is going. It is a 'reasonable accommodation' under the Americans with Disabilities Act and is needed in all public institutions,” Danner said.
More funding is needed before that can happen, she added. In the meantime, it is a pleasure for her to provide CART for private clients like Zia UMC. “It's a rewarding offshoot of the 'closed captioning' that's provided for television shows,” Danner said. A few weeks ago, the project began at Zia.
“I think Betty was walking about six feet off the ground when she left that first service with the captioning,” Carpenter said. “It apparently improved her whole church experience. She gets to take part in the community a lot more.”
“It has made such a difference for me. I can now hear — I mean read — the children's lesson, the announcements, the requests for prayers, the Scripture readings, the sermon and so on — everything spoken over the PA system,” Meador rejoiced.
The initial grant will keep the CART system going through Easter, Meador said. After that, she is hopeful that enough others with late deafness or severe hearing loss will have made their way to Zia that she can find some more funding.
“Bethany said we will need a second service when the word spreads enough,” Meador said. “I am sure the congregation will be able to afford it then.”
[HLAA Editor’s Note: Houses of worship are exempt from the Americans with Disabilities Act to provide “reasonable accommodation.” This is why this story is so compelling. Betty needed communication access and her church found a way to provide it although they have no legal obligation to do so. They complied with the “spirit” of the law.]
02-23-2009 Parents Group: HLA-Rochester, New York
Some chapters have special-interest groups within the chapter. Here is what Katy Kuczek, mother of a daughter with hearing loss, says about the value of a support group.
My nine-year-old daughter is hard of hearing and wears hearing aids in both ears. She was diagnosed almost six years ago. Since then, I've searched the Internet for information, read books on hearing loss, joined HLAA, reached out to other parents, and talked to a multitude of professionals (speech teachers, audiologists, and Ear, Nose, Throat Doctors).
But do I really know what it feels like to be a child with a hearing loss? Sadly, the answer is no.
I’m more patient when she says “what?” time and time again. I explain to and try to educate those we come in contact with who are curious. I empathize and nurture. We participate in the Walk4Hearing every year. But I still don’t really know what it's like to go through life with only partial audio input from the world around you.
Her frustration is palpable. The struggle to fit in at school, to keep up in class, straining to hear every word-- it must be exhausting. The experts say it takes so much more effort for children with hearing loss to learn at school than the hearing child.
So what to do? I’ve come to the conclusion that the best thing for children with hearing loss is to put them in contact with others like them. Adults benefit from social groups, why not children? Being with others who experience the world the same way, through the same ears so to speak, is accepting and affirming.
If your child has hearing loss, please consider joining our parents group at HLA-Rochester. Contact kkuczek@rochester.rr.com for more information.
01-26-2009 Boca Raton and Delray/Boynton Beach, Florida HLA Chapters Merge
The Delray/Boynton Chapter of Hearing Loss Association of America and the chapter in Boca Raton have merged, according to Oscar Segal, president of the Delray/Boynton group and Geraldine Young, president of the Boca chapter. The new organization will now be known as the South Palm Beach County Chapter—Delray/Boynton/Boca.
Segal said the merger was mainly for the convenience of clients. “The Boca chapter has night meetings,” he said. “With the demographics of this area, many senior citizens can’t drive at night.” We have meetings in the daytime, every other Friday,” he said. “We get a lot more seniors.
The first meeting of the newly combined chapter was held on Jan. 16 at 10 a.m. at the South County Civic Center on Jog Road, Delray Beach. Future meetings will take place the third Friday of each month at this location through May. Doctor of Audiology Steven D. Sederholm, Au.D., will be the principal speaker to tell the audience about “What’s new in hearing aid technology - audiologic advancements in restoring speech comprehension in hearing aids.”
A Report by-Oscar Segal, President of the Formerly-Named Delray-Boynton HLA-Chapter
I am happy to report that The Delray-Boynton Chapter is going strong. We enjoy great attendance and continue to grow; averaging two to three new paid member sign-ups each session even though we make it known that all meetings are open to the public; no obligation.
Our meetings are, as usual, a productive and informative experience for our members and first-time visitors alike (50 or more attendees). In addition to an impressive roster of speakers – professionals and practitioners in audiology and ENT medicine - we have presentations by experts in hearing disorders from the University of Florida, Florida Atlantic University and other related organizations. We also feature members of law enforcement and fire-rescue responders who talk about the difficulties of communicating with persons who have hearing loss in a 911- situation or law enforcement encounter.
Our meetings are dynamic; in addition to speakers, at nearly every meeting, we show a PowerPoint slide presentation of a particular life-situation where a HOH person is at risk. We have created a series of these informative and educational 20-minute programs under the very appropriate heading of “The Dangers of Being Hearing impaired.” The series includes such topics as:
Surviving in a Hospital Environment
Law Enforcement and The Deaf driver
Friendly Skies – Deaf Flier Beware
ADA – Hotel/Motel Safety for Deaf Travelers
T-COILS - Importance of T-Coils on Phones & in Public Places
Implants – Cochlear vs BAHA; Similarities & Differences
ICE - Emergency Notification Device if Unable to Respond
SUNPASS – Timely Battery Check for Hard Of Hearing
In addition to monthly meetings, we conduct seminars in public libraries, at wellness fairs and at meetings of community associations such as men’s Clubs, Ladies Clubs and other social gatherings where we talk to groups ranging from 25 to 100 or so. The seminars are complete with slide shows highlighting the advantages of what HLAA can do for with hearing loss.
We are also heavily committed to a public service program called the “Visor Card” program. The Visor Card program is an initiative to educate Law Enforcement people in organizations like the Sheriff’s Department, Local Police, and Highway Patrol personnel how to communicate with Deaf and Hard of Hearing drivers. Our President Oscar Segal, and Mort Mazor, Board member and Public Relations chair, met with several influential groups in the Palm Beach County Sheriff’s department to introduce the program. We have already seen progress in Palm Beach County. Deputy Richard Jackson, District 1 Crime Prevention Coordinator, is working with our chapter implementing this program. To date, Sheriff’s Deputies already are receiving training in this important effort.
And last October, Deputy Jackson introduced the program at the Southern States Crime Prevention Symposium. He will be reporting on that at our December meeting.
Our goal is to eventually make this program a standard for all law enforcement agencies in the State of Florida.
01-12-2009 Hearing Loss Association of Florida Call for Applications
The Hearing Loss Association of Florida (HLA-FL) is seeking qualified individuals to serve on the HLA-FL Board of Trustees for a three-year term beginning October 3, 2009.
Who is Eligible?
All members of Hearing Loss Association of America (HLAA) who are Florida residents are eligible. HLA-FL is committed to assembling a board comprised of individuals with a diversity of skills, backgrounds, hearing loss, and ages. Hearing applicants with sensitivity to the needs of people with hearing loss will be considered. Ability to work with others is essential. Positive thinkers with the desire to improve the quality of life for hard of hearing Florida residents are encouraged to apply. HLA-FL members can nominate themselves for board membership or nominate another Florida HLAA member (with permission).
What is Required?
The board meets at least three times a year in locations that vary to provide equitable geographic access. Members are encouraged to attend all meetings. Costs of travel are the members' responsibility. Members are asked to take active roles on standing and ad hoc committees. Meetings are presently held on Saturdays to accommodate employed members. Major committee work occurs between board meetings and is most often transacted by e-mail or chat room, and thus, Board members are required to have e-mail access. Reimbursements of previously approved expenses on behalf of HLA-FL are available to trustees upon request.
How to Apply for the HLA-FL Board:
Application forms are available by contacting Richard Herring, Chair, Nominating Committee, 1317 Caloosa Lake Ct., Sun City Center, Florida 33573-4869 or by e-mail at: rhmann@tampabay.rr.com.
Applications must be returned no later than August 14, 2009.
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Joe Gordon to Retire as State Chapter Coordinator
New York State Chapter Coordinator Joe Gordon has announced his decision to retire from this position effective February 1, 2009.
For over 12 years Joe has been dedicated to the development of the strong affiliate network throughout New York. In 1999, he received the HLAA Keystone Award, a special honor for outstanding achievement and contributions to the success of the organization. Joe has also been an effective advocate at local, state and national levels for which he received the HLAA Advocacy Award in 2006.
HLAA is deeply appreciative of Joe’s service and will miss working with him on chapter development, but pleased he will continue as an active member.
11-17-2008 Joan Andrews Scholarship Award Available to Florida Members
The Hearing Loss Association of Florida announces the first “Joan Andrews Scholarship.” Joan Andrews, former president of the Florida Association of Self Help for Hard of Hearing People, now known as the Hearing Loss Association of Florida, worked tirelessly to improve the quality of life for individuals with hearing loss.
The Joan Andrews Scholarship will be awarded to an individual who demonstrates in writing (by completion of the application process) a sincere educational interest in and commitment to sharing the mission of the Hearing Loss Association with others affected by hearing loss. The Selection Committee will give priority consideration to an applicant who meets all the criteria as set forth in the application process AND who cannot afford to attend the HLAA convention without the assistance of this scholarship.
SCHOLARSHIP DESCRIPTION: The scholarship will entitle the winner to a registration to the Hearing Loss Association of America convention in Nashville, TN, from June 18-21, 2009. The scholarship will also include a room at the convention hotel for three nights and round trip airfare or automobile travel expense between Florida and Nashville. The maximum value of the scholarship is $1,200.00. The winner is responsible for making all travel, hotel and convention registration arrangements.
ELIGIBILITY: An applicant must be a Florida resident and member in good standing of the Hearing Loss Association of America. Current members of the HLA-FL Board of Trustees are not eligible.
The deadline for receipt by HLA-FL of the completed application is March 31, 2009. For more information and/or to receive an application, please contact Kathy Borzell, Scholarship Committee or call 813-298-6380.
10-06-2008 HLA-New Jersey Member Arlene Romoff honored.
Theater Resources Unlimited, in association with sponsors Theatrical Rights Worldwide, Elysabeth Kleinhans, C2 - Caption Coalition and the Players Theatre, announces the seventh annual TRU LOVE BENEFIT. The event will honor producing maverick Ken Davenport and Arlene Romoff, advocate for open captioning for live theater, at a luncheon benefit on Sunday, November 9, 2008 at Caroline’s on Broadway. The event, themed “Believe ... in the possibilities of theater,” begins with a cocktail hour reception at noon followed by a luncheon at 1pm, with entertainment and an awards ceremony to start at 1:45 and a Silent Auction throughout the afternoon. Read the press release.
The Charlotte (NC) HLA Chapter is sponsoring a Hearing Symposium on November 9, 2008, 2 p.m. - 4 p.m. at Shalom Park (Levine Jewish Community Center) in Charlotte. The symposium is free and open to the entire Charlotte and surrounding communities. The Symposium’s topic is Overcoming the Challenge of Hearing Loss, Developing Strategies for Success. To make a reservation, call 703.749.3070.
A meeting idea from HLA of Beaumont, CA: Hearing Loss Magazine is filled with excellent and helpful articles. Members are asked to select an article from the magazine and give a three-to-five minute review at the meeting. Other suggestions are for members to share their experiences like coping skills, products they find helpful, questions for the group, or discussions that one might find helpful to others.
Veryl White, chapter librarian, reminds members they keep a supply of back issues of Hearing Loss Magazine. [All HLAA chapters receive a library copy of Hearing Loss Magazine.]
HLA of Central Virginia was pleased to host a Statewide Interagency Town Hall Meeting in September that included the VA Department for the Deaf & Hard of Hearing, VA Department for the Blind and Vision Impaired, Valley Community Services Board, and the Woodrow Wilson Rehabilitation Center. Representatives from each agency listened to members’ problems, ideas and solutions in order to foster more interaction among the state agencies.
HLA-Williamsburg (VA) has enjoyed the support of the Disabled American Veterans (DAV) for many years. Chapter Ombudsman Bill Dunn is on the DAV board ensuring that the Williamsburg chapter work is recognized. Annual contributions from the DAV have enabled the chapter to help make Williamsburg communication accessible. In turn, chapter members help the DAV by donating their used clothing, household effects, books etc.
What are your Chapter’s goals? From the Southwest Connecticut Chapter newsletter, “As we enter our Chapter’s ninth year, let’s work toward a goal to create awareness of assistive listening devices. Our membership stretches from Milford to Greenwich. Wouldn’t it be great if we could generate enough interest to produce hearing accessible facilities throughout those towns?”
Debbie Schaaf has been involved with HLAA since 2002 and has served as chapter president for the HLAA Wayne and Holmes County Chapter for the past five years. She was born with a hearing loss due to her mother having Rubella (German measles) and received a cochlear implant in 2001.
