HLAA 2025 Research Symposium – Hearing Loss Stigma: Making the Invisible Actionable

Research Symposium Education Health Care/Medical

HLAA 2025 Convention Research Symposium panelists

Many people with hearing loss wait seven years or longer to seek treatment, or never get treated at all. What role does stigma play in this dynamic and is the public’s perception of hearing loss improving over time? What can people with hearing loss do to rise above experiences of stigma in their own lives?

At the Hearing Loss Association of America (HLAA) annual convention in June 2025, a panel of top researchers in this field engaged the audience with consumer-friendly presentations that inspired curiosity and questions.

Key Takeaways:

Understand how stigma affects people with hearing loss
Explore hearing aid stigma in health care settings
Apply lessons from HIV stigma to hearing care
Learn five steps to overcoming the stigma of hearing loss

Watch the recordings, access slide presentations and read about the panelists below:

Panelists

Ibrahim “Ib” Dabo

Commissioner for the Georgia Commission for the Deaf or Hard of Hearing

As a leadership and resilience coach, keynote speaker and advocate, Ib empowers individuals to rise above challenges, embrace authentic leadership and break through barriers for personal and professional transformation. His career spans journalism, communications, IT and public service, where he has led international teams through crises and driven meaningful change. Ib’s journey—from refugee to hearing loss advocate and global team leader—gives him a unique and powerful perspective. A former international journalist and Board Member for the Hearing Loss Association of America (HLAA), he is committed to fostering inclusivity and supporting individuals with hearing loss.

Presentation: Break the Silence: Transforming Stigma into Strength for Hearing Loss

Laura Nyblade, Ph.D.

Fellow and senior technical advisor on stigma and discrimination in the division for global health, RTI International

A public health expert specializing in research on stigma, Dr. Laura Nyblade has over two decades of experience in health research, instrument development, program design and evaluation, intervention development and implementation of research findings. She brings her expertise to address conditions with a longer history of stigma research and intervention (e.g., HIV) to newer conditions (e.g., hearing loss). She has co-led a sub-working group on hearing loss stigma under the Lancet Commission on Hearing Loss, which hs developed a guiding framework for action on stigma measurement and reduction. She also published a suite of measures for hearing loss stigma in Ghana and the U.S., which exploring the intersection of stigma and ageism for people with acquired hearing loss.

Presentation: Disentangling Stigma: Applying Lessons from HIV to Hearing Care

Margaret Wallhagen, Ph.D., GNP-BC, AGSF, FGSA, FAAN

Professor, Department of Physiological Nursing and director, Center of Gerontological Nursing Excellence, University of California, San Francisco (UCSF).

Since joining the UCSF faculty in 1988, Dr. Wallhagen has taught gerontological nursing at both the masters and doctoral level. Meg’s research focuses on how older individuals and their families manage chronic illnesses and changes that occur with age, with a recent emphasis on the impact of hearing loss on older adults. Her work has included a four-year longitudinal study on the experience of hearing impairment in older adults and their partners, and a study on the comparative effectiveness of three protocols to enhance the integration of hearing screening and education into primary care settings. Her current research is exploring the impact of hearing loss in the context of serious illness and the provision of palliative care.

Presentation: Taking a Deeper Dive: Hearing Loss and Hearing Aid Stigma in the Healthcare-Family Context

Jessica S. West, Ph.D., MPH

Medical sociologist and faculty at Duke University School of Medicine, Department of Head and Neck Surgery & Communication Sciences

Dr. West is a medical sociologist specializing in research on hearing loss, aging and health disparities over the life course—studying how hearing loss affects people’s health and well-being throughout their lives. She is particularly passionate about researching the stigma associated with hearing loss and hearing devices and identifying ways to reduce it. Her interest in this research is personal, as someone with congenital, bilateral, moderate-to-severe sensorineural hearing loss who has worn hearing aids since the age of 17. Dr. West’s research, which leverages both population-level data and electronic health record data, has appeared in the Journals of Gerontology, Social Science & Medicine, Ear and Hearing and other leading journals in medical sociology, hearing and aging research.

Presentation: Implications of Stigma for Individuals with Hearing Loss

Moderator

Carrie Nieman, M.D., MPH

Associate professor, Johns Hopkins Medicine Department of Otolaryngology-Head and Neck Surgery

Dr. Nieman is an associate professor in the division of otology, neurotology and skull base surgery in the Johns Hopkins Department of Otolaryngology-Head and Neck Surgery and also serves on the HLAA Board of Directors. Her clinical practice is dedicated to the medical and surgical management of hearing loss and Eustachian tube disorders. Dr. Nieman’s research is directed at understanding and addressing hearing health disparities among older adults, particularly among vulnerable populations. Her work focuses on the development and implementation of innovative, community-delivered approaches to affordable, accessible hearing care.

HLAA’s Research Symposia are supported, in part, by a grant from the National Institute on Deafness and Other Communication Disorders, National Institutes of Health (Award Number R13DC017913).