Advocating

This one-hour webinar provided an overview of the FDA drug development process as well as the value of Patient-Focused Drug Development (PFDD) meetings. We hope this webinar spiked your interest...This one-hour webinar provided an overview of the FDA drug development process as well as the value of Patient-Focused Drug Development (PFDD) meetings. We hope this webinar spiked your interest in being part of this important virtual meeting for the hearing loss community taking place on Tuesday, May 25, 2021. Read More >

Federal, state and local disability laws are intended to bring people with all manner of disabilities, including hearing loss, into the mainstream of public life. But implementing those laws in...Federal, state and local disability laws are intended to bring people with all manner of disabilities, including hearing loss, into the mainstream of public life. But implementing those laws in practice is up to affected individuals. How well do you understand your accessibility rights? What steps can or should you take if you feel your rights have been denied? Read More >

Each of us has a story – several really – that goes beyond our hearing loss, our hearing aids and the challenges we face living with them. What‘s your story?...Each of us has a story – several really – that goes beyond our hearing loss, our hearing aids and the challenges we face living with them. What‘s your story? Have you used your talents – your writing, your art, your music, your voice – to share your story with others? Stu Nunnery and Laurel Jonason shared excerpts from their new screenplay, “Good Enough,” to illustrate how authentic, three-dimensional characters... Read More >

2020 is the 250th birthday of the composer Ludwig van Beethoven. While Beethoven had very few resources as a musician and composer in the 1850s to cope with his increasing...2020 is the 250th birthday of the composer Ludwig van Beethoven. While Beethoven had very few resources as a musician and composer in the 1850s to cope with his increasing deafness, in 2020 we have more resources. In this webinar, Wendy will talk about strategies and devices she uses to make music with a hearing loss and end with a discussion about her nonprofit, the Association of Adult Musicians with... Read More >

The world’s first International Consensus Paper on Adult Cochlear Implantation was published on August 27, 2020 in JAMA Otolaryngology–Head & Neck Surgery. This new study focuses on treatment for adults...The world’s first International Consensus Paper on Adult Cochlear Implantation was published on August 27, 2020 in JAMA Otolaryngology–Head & Neck Surgery. This new study focuses on treatment for adults living with severe to profound sensorineural hearing loss (SNHL) which recommends minimum standards for diagnosis, referral, treatment and aftercare. Dr. Craig Buchman, lead author of the paper, and Dr. René Gifford, one of 31 experts who authored the paper and... Read More >

A guest panel from the FCC Disability Rights Office covers accessibility updates on matters that are important to people with hearing loss, including accessible video programming, emergency communications, and telecommunications.A guest panel from the FCC Disability Rights Office covers accessibility updates on matters that are important to people with hearing loss, including accessible video programming, emergency communications, and telecommunications. Read More >

The coronavirus pandemic has changed the landscape of the country and made those of us with hearing loss acutely aware of new barriers to everyday communication. Working from home or...The coronavirus pandemic has changed the landscape of the country and made those of us with hearing loss acutely aware of new barriers to everyday communication. Working from home or attending school over the internet, confronting Plexiglas barriers and face masks in the grocery store and a trip to an overwhelmed hospital ER all challenge the old ways of accommodating our hearing loss. When the pandemic hit and shutdowns across... Read More >

What started as a mission to help the elder community has progressed to giving anyone with hearing aids or a cochlear implant the peace of mind that they will always...What started as a mission to help the elder community has progressed to giving anyone with hearing aids or a cochlear implant the peace of mind that they will always have a consistent supply of fresh batteries delivered to their home. We will break down the health benefits of always having access to batteries, describe some of our members’ journeys and the barriers they faced before joining, and define what... Read More >

Join Bill Barkeley, a deaf-blind adventurer, advocate and storyteller for a conversation on his most recent adventures to Spain and Nepal.   Bill will share insights on his journeys that...Join Bill Barkeley, a deaf-blind adventurer, advocate and storyteller for a conversation on his most recent adventures to Spain and Nepal.   Bill will share insights on his journeys that have led to his co-authoring the No Barriers Life Elements that anyone can use to build a richer and more fulfilling life − regardless if you have any physical challenges or not. Read More >

Do you let your hearing loss stop you from living a purposeful, meaningful, and productive life? Are you ashamed or embarrassed about your hearing loss? Are you unsure how to...Do you let your hearing loss stop you from living a purposeful, meaningful, and productive life? Are you ashamed or embarrassed about your hearing loss? Are you unsure how to handle your hearing loss at work/school, social environment or physical activity? Not only will Susanna share personal stories, she will give you suggestions on how to handle these situations successfully whether you wear hearing aids or cochlear implants. After this presentation,... Read More >